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Narcolepsy
Definition
Per the Alaska Sleep Clinic, narcolepsy is defined as “a neurological disorder characterized by the brain’s inability to control sleep cycles and wakefulness.” Narcolepsy affects approximately 1 in 2,000 people making it one of the most common sleep disorders.However, when someone thinks of narcolepsy, they often think of the inability to stay awake and the ability to fall dead asleep out of nowhere. While that is one very severe type of narcolepsy, it is incredibly rare and is more so a stereotype than a fact (Phillips, 2014). Narcolepsy has been known since the 1870s but the only real pertinent research that we have on it has been done in the past 15 years. In this regard it is “new”, as not much is known about the disorders as is about many others (The Science of Narcolepsy, 2018). The correct way to discuss someone with this disorder using people first language is “a person with narcolepsy.”
Causes: Studies done on patients with narcolepsy show that it has been found that they have significantly reduced levels of the neurotransmitter hypocretin, which promotes wakefulness (Phillips, 2014). It has been revealed that narcolepsy is caused by a lack of hypocretins, key brain chemicals that help sustain alertness and prevent REM sleep from occurring at the wrong times. (The Science of Narcolepsy, 2018).Narcolepsy largely comes from genetics. It is possible for a parent to have the genes for narcolepsy, without actually having narcolepsy, and can pass it on to their children. It is not uncommon from individuals age 6-11 to suddenly develop narcolepsy, as this is a key part of their development in their formative years. Emotional and developmental “triggers” during these years can cause the sudden onset of narcolepsy (The Science of Narcolepsy, 2018).
Treatment: Stimulants, anti-depressants, sodium oxybate (a sedative), and lifestyle management can all be used to treat narcolepsy. Doctors are reluctant to resort to medication to treat it, if at all possible, especially in younger children.
Symptoms:
-Excessive Daytime Sleepiness (EDS)
-Sleep paralysis
-Cataplexy
-Hallucinations
-Disturbed nocturnal sleep
Signs in the classroom:
-EDS
-Brain fog and memory problems
-Disorganization
-Unfortunately, many of narcolepsy’s symptoms will blend in with the average child’s life. For example, EDS is often mistaken in teens as laziness and sleep deprivation.
Instructional Strategies
-Naps
-Make sure children are keeping up with their medications, this might mean they must take trips to the nurse throughout the day.
-Avoid caffeine which can affect the students sleep cycle. Contrary to popular belief, caffeine is bad for those dealing with narcolepsy
-Possibility for 504 plan or IEP
-Lateness of student may have to be accepted at times.
-Note taking assistance and time accommodations
-Highlighted textbooks, to keep student alert and interested in class and the content.
-Extended deadlines
-Fidgeting (i.e. fidget spinner) can be used to keep student alert and active
-Do not embarrass student because of their narcolepsy or issues that may come with it
Useful Websites
https://narcolepsynetwork.org/One of leading narcolepsy advocate agencies in country.
https://narcolepsynetwork.org/resources/for-students/Website with lots of particulars on students with narcolepsy. Students who have narcolepsy can also utilize this site.
https://narcolepsynetwork.org/wp-content/uploads/2014/01/10-Things-Educators-Should-Know.pdfBasic things educators should know about narcolepsy and students with narcolepsy.
http://healthysleep.med.harvard.edu/narcolepsy/living-with-narcolepsy/dailylifeNarcolepsy in the daily life.
https://www.narcolepsy.org.uk/sites/narcolepsy.org.uk/files/files/Narcolepsy%20Need-to-Know%20Guide%20-%20For%20Teachers.pdf Another explanatory guide on narcolepsy.
Research
A look and investigation into treating children with narcolepsy and cataplexy. A very scientific definition and breakdown of narcolepsy and cataplexy is given. Not only does the article deal with the different pharmaceutical ways to treat narcolepsy and cataplexy, it takes a look at the potential side effects of treatments. One vaccine, the H1N1, in particular, saw a spike in narcolepsy cases among children that received it.
Lecendreux, M. (2014). Pharmacological Management of Narcolepsy and Cataplexy in Pediatric Patients. Pediatric Drugs, 16(5), 363–372. https://doi-org.proxy.jjc.edu/10.1007/s40272-014-0083-3
A nationwide study, this article takes a look at and investigates the relationship between body weight, basal metabolic rate, and the development of narcolepsy in adolescents. The heavier a child weights, the study found, the more likely that is to trigger narcolepsy if they have the genetic factors to do so. The raising rates of childhood obesity in the country could increases the number of pediatric narcolepsy cases.
Wang, Z., Wu, H., Stone, W. S., Zhuang, J., Qiu, L., Xu, X., … Zhao, Z. (2016). Body weight and basal metabolic rate in childhood narcolepsy: a longitudinal study. Sleep Medicine, 25, 139–144. https://doi-org.proxy.jjc.edu/10.1016/j.sleep.2016.06.019
Another nationwide study, this article takes a look at the correlation, or lack thereof, of migraines and narcolepsy in children. This is relationship is controversial topic, akin to the vaccination-autism debate and correlation that is currently dominating the news cycle. The purpose of this research was to investigate whether migraines are associated with an increased risk of developing narcolepsy in children.
Yang, C.-P., Hsieh, M.-L., Chiang, J.-H., Chang, H.-Y., & Hsieh, V. C.-R. (2017). Migraine and risk of narcolepsy in children: A nationwide longitudinal study. PLoS ONE, 12(12), 1–13. https://doi-org.proxy.jjc.edu/10.1371/journal.pone.0189231
Bibliography
Phillips, K. (2014, October 6).Narcolepsy: Definition, Treatment, and Symptoms.Center. Retrieved from https://www.alaskasleep.com/blog/narcolepsy-definition-symptoms-causes-treatment
Munk, B. (2014, November 01). Teen essay: Living with narcolepsy and cataplexy. Retrieved from https://www.pressdemocrat.com/lifestyle/2909346-181/teen-essay-living-with-narcolepsy
Narcolepsy at School. (2018, February 21). Retrieved from http://healthysleep.med.harvard.edu/narcolepsy/living-with-narcolepsy/at-school
Narcolepsy for Students. Narcolepsy Network.(2018, January 1). Retrieved from https://narcolepsynetwork.org/resources/for-students/
Stanford Medicine Center for Narcolepsy. (2018, June 25). Retrieved from http://med.stanford.edu/narcolepsy.html
The Science of Narcolepsy. (2018, February 21). Retrieved from http://healthysleep.med.harvard.edu/narcolepsy/what-is-narcolepsy/science-of-narcolepsy
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